This post is aimed at the family members and the close circle that surrounds people with fibromyalgia.
Although fibromyalgia is not noticeable, its existence is real. Because many people think that a person is not really sick unless he looks sick. When a person has fibromyalgia, the person can be full of health (on the outside), but inside him, there is a procession of symptoms. So, we can say that fibromyalgia attacks with hidden symptoms or the symptoms are not visible on one’s health.
To the Family Members of Fibromyalgia Warriors
Fibromyalgia is a difficult disease to understand. Although there is no cure, it can be managed to have a quality time in life. As all cases are different, and everyone suffering from it, have their own symptoms. Therefore, treatments such as exercises, medications or therapies do not work equally for everyone. So, it is a constant search to find what works best for you according to your symptoms.
Do not let appearances deceive you. Often relatives or friends may have the perception that a person with fibromyalgia is not making enough effort to fight with it. Because they do not eat well or do not exercise enough. Whereas, every effort that is made, no matter, how small, is much greater than it would cost to make someone healthy.
Fibromyalgia is not a psychological problem. Many people believe that it is impossible to have so many heartbreaking symptoms, and after medical examination, nothing comes out. So, they attribute this condition to a problem of psychological origin. Apart from this, it is important to know that there is enough scientific evidence to prove that it is a real problem.
It is natural that a person with fibromyalgia can no longer do the same things as before, due to sickness. Moreover, they need a lot of help from their relatives to help them in life matters. So, with fibromyalgia life can change completely.
Changes in the level of activity of a person are normal in fibromyalgia. Furthermore, fibromyalgia patient may be very active for a day, as another day may not get out of bed. It does not mean that a person is lazy or pretending to avoid work. There will be days in the life of fibromyalgia patient when the amount of energy will be very low. Hence, Fibromyalgia is a disease with many ups and downs in body condition.
The person with fibromyalgia lives in permanent suffering. Even if you do not express it, you always feel pain throughout your body. Exhaustion, and many external stimuli, such as smells, noise, lights, weather, and other factors, can make your discomfort worse.
Moreover, fibromyalgia patient tries to avoid physical contact with others because they experience a lot of pain with non-painful stimuli. Such as hand grips, slaps on the back, touches on the arm and shoulders, even with a strong hug, in general, any touch that produces friction.
Undoubtedly, the fatigue of fibromyalgia is not a simple fatigue. It is not only physical exhaustion, but also mental exhaustion, which does not improve with rest, and may prostrate a person in bed for several days. The person feels consumed by fatigue and exhaustion.
Fibromyalgia patient mostly refuses invitations or stop attending meetings because they are exhausted. This is because they are going through a crisis or they have a limited amount of energy. Due to which they are afraid that certain activities may trigger an outbreak.
Moreover, fibromyalgia causes cognitive problems. The person forgets things (sometimes small, sometimes important) and they have to face difficulty concentrating. This is known as fibroneblin. It often causes them to lose things or feel disoriented.
It should be noted, fibromyalgia patient should necessarily avoid stress. Because it has been shown that stress worsens the symptoms of fibromyalgia increasing their pain and fatigue. Try to provide a quiet environment at home and avoid stressors for fibromyalgia.
Moreover, the support and understanding of their family members can make them feel better. Although, it is very little you can do about this disease, do not treat it as if nothing happened. Because, this attitude can be perceived as disinterest, making fibromyalgia patients feel that you do not care, which affects your relationship with them.
Whereas, if you still do not know about this chronic illness, search on the internet. There are countless sources of information about it, which will allow you to help your loved ones to manage it better. Join fibromyalgia patients in their medical appointments, this is the best way to show your support.